October 2nd, 2016 (Day +9)
WBC = 0.7 !!!
Jess was awake most of the day. Doc says maybe she can go home on Tuesday (Oct 4); so not a few weeks as originally discussed. They seem more motivated to get her home than when we were first discussing the transplant plan. Better to be home in your own bed if possible.
Using much less of the Fentanyl pump for pain control. Rinsing with”Magic Mouthwash” before meals has helped Jess eat a little more; it provides temporary freezing that wears off fast. Ensure hurts significantly going down but Resource, a different liquid meal replacement option that packs ~450 calories, hurts much less. We played two games of Skip Bo. Yesterday and today we’ve walked around and around the circuit (on the unit). This evening we commandeered a wheelchair, figured out how to make it dance with the IV pole, and ventured down to the quiet 2nd floor and then even outside for five minutes! Glad to say the incontinence was very temporary and seems to have cleared up.
October 3rd, 2016 (Day +10)
WBC = 2.4
Jess was able to eat almost all of her breakfast; Magic Mouthwash and Sulcrate now giving sufficient relief to eat soft foods. This afternoon Jess was untethered from all but the Fentanyl pump. Happy to report that she hasn’t needed to use it since early morning! Went outside again this evening for a little while. It has been sunny, warm autumn days in Ottawa.
October 4th, 2016 (Day +11)
WBC = 4.5
Jess didn’t need the Fentanyl at all thru the night or this morning so it is gone now. Yay! We were told during the planning meeting that if she did get mucositis it would clear up as soon as the WBC count started to come up and that’s exactly what is happening.
Jess was discharged at 2:30pm (sprung 2.0!). First stop was The Cupcake Lounge for a German chocolate cupcake for Jess.
She had a soak in the tub, clean sheets, and all kinds of PVRd shows to catch up on but mostly sleep won out.
October 5, 2016 (Day +12)
WBC = 3.9
Today was a hospital check in (BMT clinic) day; we are there for two hours while they check vitals, draw blood, and wait for the results to come back. All is well. Jess has taken nothing for pain for the past 24 hours and only very occasionally something for nausea.
The decrease in her WBC was expected by the team since she is no longer getting Neupogen. She was getting daily injections up until yesterday.
Tomorrow will be a rest day … no clinic appointment! Yay!