Tag Archives: Fentanyl

Sprung 2.0!

October 2nd, 2016 (Day +9)

WBC = 0.7 !!!
Jess was awake most of the day. Doc says maybe she can go home on Tuesday (Oct 4); so not a few weeks as originally discussed. They seem more motivated to get her home than when we were first discussing the transplant plan. Better to be home in your own bed if possible.

Using much less of the Fentanyl pump for pain control. Rinsing with”Magic Mouthwash” before meals has helped Jess eat a little more; it provides temporary freezing that wears off fast. Ensure hurts significantly going down but Resource, a different liquid meal replacement option that packs ~450 calories, hurts much less. We played two games of Skip Bo. Yesterday and today we’ve walked around and around the circuit (on the unit). This evening we commandeered a wheelchair, figured out how to make it dance with the IV pole, and ventured down to the quiet 2nd floor and then even outside for five minutes! Glad to say the incontinence was very temporary and seems to have cleared up.

October 3rd, 2016 (Day +10)

WBC = 2.4
Jess was able to eat almost all of her breakfast; Magic Mouthwash and Sulcrate now giving sufficient relief to eat soft foods. This afternoon Jess was untethered from all but the Fentanyl pump. Happy to report that she hasn’t needed to use it since early morning! Went outside again this evening for a little while. It has been sunny, warm autumn days in Ottawa.

empty-iv-pole-oct-4

“What’s that you say IV pole? You’ve got nothin’ hanging? Sucks to be you ;)”

October 4th, 2016 (Day +11)

WBC = 4.5
Jess didn’t need the Fentanyl at all thru the night or this morning so it is gone now. Yay! We were told during the planning meeting that if she did get mucositis it would clear up as soon as the WBC count started to come up and that’s exactly what is happening.

Jess was discharged at 2:30pm (sprung 2.0!). First stop was The Cupcake Lounge for a German chocolate cupcake for Jess.

She had a soak in the tub, clean sheets, and all kinds of PVRd shows to catch up on but mostly sleep won out.

sprung-2-0

Sprung 2.0

the-cupcake-lounge

She SOOOOOOO has her priorities straight, eh? That’s my girl!

October 5, 2016 (Day +12)

WBC = 3.9
Today was a hospital check in (BMT clinic) day; we are there for two hours while they check vitals, draw blood, and wait for the results to come back. All is well. Jess has taken nothing for pain for the past 24 hours and only very occasionally something for nausea.

The decrease in her WBC was expected by the team since she is no longer getting Neupogen. She was getting daily injections up until yesterday.

Tomorrow will be a rest day … no clinic appointment! Yay!

 

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*!%*# Could a girl get some sleep, already … *!%*#

September 29th, 2016 (Day +6)

The feeding tube was taken out today because, although it eliminated much of the pain on eating/drinking, it was adding to Jess’ throat irritation.

Her pain is much better controlled with the Fentanyl pump. Even with all the scheduled meds she is on for nausea there is still breakthrough and maxeran helps with that. Diarrhea has been a problem as well, I suspect because of all the fluids and no solid food to speak of.

She was able to have a shower and we played a game of Skip Bo. Even under the slight influence of narcotics, she beat me!

September 30th, 2016 (Day +7)

I can tell the pain is better controlled because Jess has asked me to bring jello, mashed potatoes, baby food (fruit), and .. wait for it ..steamed broccoli!  We’ll see how much of it she actually eats but that she is fancying it is a step forward.

Little bit of urinary incontinence today (that’s exciting!) and she’s exhausted. The care is excellent but the CONSTANT vital checks, starting/stopping IV drips, pumps alarming, doctor, physio, pain doc visits not to mention having to get up, unplug all the pumps to pee every 30 minutes then plug back in and get back into bed there is very little opportunity for meaningful, rejuvenating sleep.

Tongue in cheek, she was looking forward to losing a bit of weight through all this; so far, she has gained about 2 kg while eating only nibbles for seven days now. I suspect it’s fluid.

Because her platelets are low she is bruised all over, has been having nosebleeds, and has a big broken blood vessel in her eye that kinda makes her look like she’s been in a fight … which I guess, metaphorically, she has for a long time now.

October 1st, 2016 (Day +8)

The great news is that Jess now has some white blood cells to speak of !!!!!!!! She seemed to have bottomed out at <0.02. The doc was ecstatic today when he came in because she’s at 0.1! Definitely going in the right direction … com’on new immune system … you can do it! I believe in you! You can be anything you want to be when you grow up, even a new Jess!

Jess had a mostly sleepless night because of some of many of the interruptions mentioned previously. Her legs and feet are very swollen from the copious IV fluids. This morning the doc halved her IV hydration because she is taking in more water/ice/Ensure by mouth now so she should see some relief from the constant bathroom runs and lower leg swelling over the next 24 hours or so.

She received a bag of platelets earlier this afternoon.

Mama bear that I am, her room has been prepared for sleep (shades down, check; white noise on, check; sign on the door that says “quiet please … she finally sleeps”, check) and I’m sitting guard. No one is disturbing her unless it’s imperative and they get past me … we are now one hour into a lovely nap.

This post has not been reviewed by Jess; she would never have let me tell you about the urinary incontinence or the diet plan 😉